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Health and adverse life outcomes among individuals notified with Fetal alcohol syndrome in Western Australia
This research project will conduct a retrospective study of West Australian (WA) children diagnosed with Fetal alcohol syndrome (FAS) reported to the Western Australian Register of Developmental Anomalies (WARDA).
The aim of this study will be to:
- evaluate the prevalence of health and adverse life outcomes among a cohort of children diagnosed with FAS in Western Australia using data from the Western Australian Data linkage System (WADLS).
The specific objectives will be to:
- describe all notifications of FAS to WARDA for children born from January 1980
- describe health and adverse life outcomes among notified cases, and estimate the population attributable risk for adverse life outcomes among individuals living with FAS
- identify the use of health care services and evaluate the cost of health care service use among individuals with FAS in WA.
The study will have direct implications for policy, and the methods established will provide a basis for long-term follow-up of population level outcomes among individuals diagnosed with FAS, and potentially FASD, in WA.
Abstract adapted from Telethon Kids Institute
Dr Rochelle Watkins
Telethon Kids Institute
100 Roberts Road
Subiaco WA 6008
PO Box 855
West Perth WA 6872
Phone: (08) 9489 7724
Fax: (08) 9489 7700