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Research ethics

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Bibliography

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2012

Australian Institute of Aboriginal and Torres Strait Islander Studies (2012)

Guidelines for ethical research in Australian Indigenous studies.

Canberra: Australian Institute of Aboriginal and Torres Strait Islander Studies

Jamieson LM, Paradies YC, Eades S, Chong A, Maple-Brown L, Morris P, Bailie R, Cass A, Roberts-Thomson K, Brown A (2012)

Ten principles relevant to health research among Indigenous Australian populations.

Medical Journal of Australia; 197(1): 16-18

Kowal E, Anderson I (2012)

Genetic research in Aboriginal and Torres Strait Islander communities: continuing the conversation: discussion paper.

Melbourne: The Lowitja Institute

Kowal E, Pearson G, Peacock CS, Jamieson SE, Blackwell JM (2012)

Genetic research and Aboriginal and Torres Strait Islander Australians.

Journal of Bioethical Inquiry; Accepted Article: 27 August 2012(http://dx.doi.org/10.1007/s11673-012-9391-x)

Retrieved 12 October 2012 from http://dx.doi.org/10.1007/s11673-012-9391-x

Kowal EE (2012)

Genetic research in Indigenous health: significant progress, substantial challenges.

Medical Journal of Australia; 197(1): 19-20

McAullay D, Hayward C (2012)

Aboriginal research and study protocols.

Perth, WA: Kurongkurl Katitjin, Edith Cowan University

McWhirter RE, Mununggirritj D, Marika D, Dickinson JL, Condon JR (2012)

Ethical genetic research in Indigenous communities: challenges and successful approaches.

Trends in Molecular Medicine; 18(12): 702–708

Mentha RA, de Vries J, Simon PR, Fewquandie BN, Brady J, Ingram S (2012)

Bringing our voices into the research world: lessons from the Kanyini Vascular Collaboration.

Medical Journal of Australia; 197(1): 55-56

Thompson SC, Woods JA, Katzenellenbogen JM (2012)

The quality of Indigenous identification in administrative health data in Australia: insights from studies using data linkage.

BMC Medical Informatics and Decision Making; 12: 133

Retrieved 16 November 2012 from http://dx.doi.org/10.1186/1472-6947-12-133

Toombs M (2012)

Ethical research for Indigenous people by Indigenous researchers.

Aboriginal and Islander Health Worker Journal; 36(1): 24-26

van Holst Pellekaan SM (2012)

Socially responsible genetic research with descendants of the First Australians.

Investigative Genetics; 3: 22

Retrieved 14 November 2012 from http://dx.doi.org/10.1186/2041-2223-3-22

2011

Chenhall R, Senior K, Belton S (2011)

Negotiating human research ethics: case notes from anthropologists in the field.

Anthropology Today; 27(5): 13-17

Clapham K (2011)

Indigenous-led intervention research: the benefits, challenges and opportunities.

International Journal of Critical Indigenous Studies; 4(2): 40-48

Kendall E, Sunderland N, Barnett L, Nalder G, Matthews C (2011)

Beyond the rhetoric of participatory research in Indigenous communities: advances in Australia over the last decade.

Qualitative Health Research; 21(12): 1719-1728

Kowal E, Rouhani L, Anderson I (2011)

Genetic research in Aboriginal and Torres Strait Islander communities: beginning the conversation: discussion paper.

Canberra: Lowitja Institute

2010

Anderson WP (2010)

Doing more to improve Indigenous health: the new NHMRC Road Map: editorial.

Medical Journal of Australia; 192(10): 610-611

Hing N, Breen H, Gordon A (2010)

Respecting cultural values: conducting a gambling survey in an Australian Indigenous community.

Australian and New Zealand Journal of Public Health; 34(6): 547–553

Maar MA, Seymour A, Sanderson B, Boesch L (2010)

Reaching agreement for an Aboriginal e-health research agenda: the Aboriginal telehealth knowledge circle consensus method.

Rural and Remote Health; 10(Online): 1299

Retrieved from http://www.rrh.org.au/articles/showarticlenew.asp?ArticleID=1299

National Health and Medical Research Council (2010)

Road map II: a strategic framework for improving the health of Aboriginal and Torres Strait Islander people through research.

Canberra: National Health and Medical Research Council

Road Map II is a strategic framework for improving health among Aboriginal and Torres Strait Islander people through research. Road Map II will be used by the NHMRC''s Research Committee to identify research topics requiring priority funding. This framework can be used by researchers to develop proposals to apply for funding under the NHMRC call for Research in Aboriginal and Torres Strait Islander health.

Effective research is that which highlights positive social participation, the barriers to this participation being poverty and psychosocial stress. The underlying principles for Road Map II research are:

  • Health is a whole of life view construct embracing the life, death, life concept;
  • The development, conduct and communication of research requires the involvement of the Aboriginal and Torres Strait Islander community;
  • To support effective capacity exchange requires communication of research plans, progress and results;
  • Ethical research that has practical application and value to Aboriginal and Torres Strait Islander people and their service providers;
  • Enhancing the capacity of the Aboriginal and Torres Strait Islander workforce by developing skills and knowledge; and
  • Identifying exemplars of best practice or models of success.

Road Map II research activities will be required to have an action orientated purpose and/or be linked to the community-capacity building goals of existing primary health care service delivery agencies. Researchers are also required to include research translation activities within their proposals.

Australian Indigenous HealthInfoNet abstract

Ormiston NT (2010)

Re-conceptualizing research: an Indigenous perspective.

First Peoples Child & Family Review; 5(1): 50-56

Studdert DM, Vu TM, Fox SS, Anderson IP, Keeffe JE, Taylor HR (2010)

Ethics review of multisite studies: the difficult case of community-based Indigenous health research.

Medical Journal of Australia; 192(5): 275-280

2009

Bessarab D, Solonec C, Gibbs T, Lehmann D, Wright M (2009)

Not just scholars but leaders: learning circles in Indigenous health research. An indigenous capacity building grant community report.

Perth, WA: Telethon Institute for Child Health Research

Desert Knowledge Cooperative Research Centre (2009)

Aboriginal knowledge and intellectual property protocol community guide.

Alice springs: Desert Knowledge Cooperative Research Centre

Dingwall KM, Lewis MS, Maruff P, Cairney S (2009)

Reliability of repeated cognitive testing in healthy Indigenous Australian adolescents.

Australian Psychologist; 44(4): 224-234

Gorman D, Toombs M (2009)

Matching research methodology with Australian Indigenous culture.

Aboriginal and Islander Health Worker Journal; 33(3): 4-7

Harvey PW (2009)

Science, research and social change in Indigenous health - evolving ways of knowing.

Australian Health Review; 33(4): 628-635

Kelly B, Gili N (2009)

Conflict and collaboration – a sociology of knowledge production in the field of Indigenous studies.

Paper presented at the Australian Social Policy Conference 2009. 8-10 July 2009, University of New South Wales, Sydney

Kildea S, Barclay L, Wardaguga M, Dawumal M (2009)

Participative research in a remote Australian Aboriginal setting.

Action Research; 7(2): 143-163

Knight JA, Comino EJ, Harris E, Jackson-Pulver L (2009)

Indigenous research: a commitment to walking the talk. The Gudaga Study - an Australian case study.

Journal of Bioethical Inquiry; 6(4): 467-476

Kolewaski CD, Yeates K (2009)

Chronic kidney disease among Indigenous populations: considerations for effective and ethical research.

Journal of Nephrology; 22(5): 571-579

Laycock A, Walker D, Harrison N, Brands J (2009)

Supporting Indigenous researchers: a practical guide for supervisors.

Darwin, NT: Cooperative Research Centre for Aboriginal Health

Mayo K, Komla T, Empowerment Research Team (2009)

Research dancing: reflections on the relationships between university-based researchers and community-based researchers at Gurriny Yealamucka Health Services Aboriginal Corporation, Yarrabah.

Darwin: Cooperative Research Centre for Aboriginal Health

Mayo K, Tsey K (2009)

Reflections on a community and university research collaboration.

Australasian Psychiatry; 17(s1): S68-S71

McDonald EL, Priest N, Doyle JL, Bailie RS, Anderson I, Waters E (2009)

Issues and challenges for systematic reviews in Indigenous health.

Journal of Epidemiology and Community Health; 64(7): 643-644

Monk JM, Rowley KG, Anderson IP (2009)

Setting and meeting priorities in Indigenous health research in Australia and its application in the Cooperative Research Centre for Aboriginal Health.

Health Research Policy and Systems; 7(1): 1-31

Stewart J, Raiwaqavuka T, Social Health Team (2009)

Working with a community controlled health organization to develop an evidence base for their practice models.

Australasian Psychiatry; 17(S1): S79 - S82

Thompson SC, Taylor KP (2009)

Are we really committed to making a difference? Reflections on Indigenous health research and dissemination [edtiorial].

Australian and New Zealand Journal of Public Health; 33(5): 403-404

Weston R, Brooks R, Gladman J, Senior K, Denley L, Silove D, Whyman N, Kickett M, Bryant R, Files J, Aboriginal Community Advisory Committee (2009)

Ethical research in partnership with an Indigenous community.

Australasian Psychiatry; 17(S1): S51 - S53

Whitehead J (2009)

Gascoyne Aboriginal community consultation.

Geraldton, WA: Combined Universities Centre for Rural Health

2008

Davidson B, Spooner C, Fisher KR, Newton BJ, Dadich A, Smyth C, Tudball J, Flaxman S (2008)

Indigenous research strategy: working better with Aboriginal and Torres Strait Islander people and communities.

Sydney: Social Policy Research Centre

Erick W, Mooney-Somers J, Akee A, Maher L (2008)

Resilience to blood-borne and sexually transmitted infections: the development of a participatory action research project with young Aboriginal and Torres Strait Islander people in Townsville.

Aboriginal and Islander Health Worker Journal; 32(6): 5-8

Esler DM (2008)

Participatory action research in Indigenous health.

Australian Family Physician; 37(6): 457-459

Martin KL (2008)

Please knock before you enter: Aboriginal regulation of outsiders and the implications for researchers.

Teneriffe, Qld.: Post Pressed

Onemda VicHealth Koori Health Unit (2008)

We can like research… in Koori hands: a community report on Onemda VicHealth Koori Health Unit’s research workshops in 2007.

Melbourne: Onemda VicHealth Koori Health Unit, University of Melbourne

Taylor HR, Fox SS (2008)

Ethical hurdles in Indigenous research [letter].

Australian and New Zealand Journal of Public Health; 32(5): 489-490

2007

Collaborative partnerships in research: fact sheet (2007)

Beacham B, Kalucy L, McIntyre E

Cunningham J, Dunbar T (2007)

Consent for long-term storage of blood samples by Indigenous Australian research participants: the DRUID study experience.

Epidemiologic Perspectives and Innovations; 4(7):

Grant C (2007)

The role of an independent Research Ethics Committee: keeping researchers honest.

Canberra: Australian Institute of Aboriginal And Torres Strait Islander Studies

Johnstone M-J (2007)

Research ethics, reconciliation, and strengthening the research relationship in Indigenous health domains: An Australian perspective.

International Journal of Intercultural Relations; 31(3): 391-406

National health and Medical Research Council (2007)

National statement on ethical conduct in human research.

Canberra: National health and Medical Research Council

Smith-Morris C (2007)

Autonomous individuals or self-determined communities? The changing ethics of research among Native Americans.

Human Organization; 66(3): 327-336

Young D (2007)

Keeping research on track.

Paper presented at the 6th National Aboriginal and Torres Strait Islander Environmental Health Conference. 22-23 May 2007, Cairns

 
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