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Improving Indigenous patient access to kidney transplantation (IMPAKT)
The aim of the Improving Indigenous patient access to kidney transplantation (IMPAKT) study was to identify Indigenous Australians' barriers to accessing renal transplantation, and to propose strategies to reduce disparities in access to transplantation.
The research program included the following three component studies:
- component 1 - a survey of Australian nephrologists' attitudes and practices
- component 2 - an in-depth qualitative study of Indigenous and non-Indigenous end-stage renal disease (ESRD) patients' knowledge, attitudes, education and decision-making concerning transplantation
- component 3 - a review of the transplant 'work-up' requirements.
Component 1 was undertaken in 2004, resulting in several papers published in peer reviewed journals. Data collection for component 2 was completed in February 2006. Component 3 commenced in July 2006, and a peer-reviewed publication resulted in 2007.
Abstract adapted from the George Institute
Dr Alan Cass
The George Institute of Sydney
Anderson K, Devitt J, Cunningham J, Preece C, Cass A (2008)
"All they said was my kidneys were dead": Indigenous Australian patients' understanding of their chronic kidney disease.
Medical Journal of Australia; 189(9): 499-503
Cass A, Devitt J, Preece C, Cunningham J, Anderson K, Snelling P, Eris J, Ayanian J (2004)
Barriers to access by Indigenous Australians to kidney transplantation: the IMPAKT study.
Nephrology; 9(Supplement 4): s144-s146
Cass A, Cunningham J, Anderson K, Snelling P, Colman S, Devitt J, Preece C, Eris J (2007)
Decision-making about suitability for kidney transplantation: results of a national survey of Australian nephrologists.
Nephrology; 12(3): 299-304
Anderson K, Devitt J, Cunningham J, Preece C, Jardine M, Cass A (2012)
If you can't comply with dialysis, how do you expect me to trust you with transplantation? Australian nephrologists' views on Indigenous Australians' 'non-compliance' and their suitability for kidney transplantation.
International Journal for Equity in Health; 11(21): 1-14
Cunningham J (2007)
Making an IMPAKT: a national study aimed at improving access to optimal treatment for people with end-stage kidney disease.
The Chronicle; 10(2): 17-18
Morton RL, Devitt J, Howard K, Anderson K, Snelling P, Cass A (2010)
Patient views about treatment of stage 5 CKD: a qualitative analysis of semistructured interviews.
American Journal of Kidney Diseases; 55(3): 431-440
Devitt J, Cass A, Cunningham J, Preece C, Anderson K, Snelling P (2008)
Study Protocol – Improving Access to Kidney Transplants (IMPAKT): a detailed account of a qualitative study investigating barriers to transplant for Australian Indigenous people with end-stage kidney disease.
BMC Health Services Research; 8: 31
Retrieved 4 February 2008 from http://dx.doi.org/10.1186/1472-6963-8-31
Anderson K, Cass A, Cunningham J, Snelling P, Devitt J, Preece C (2007)
The use of psychosocial criteria in Australian patient selection guidelines for kidney transplantation.
Social Science & Medicine; 64(10): 2107-2114
Anderson K, Yeates K, Cunningham J, Devitt J, Cass A (2009)
They really want to go back home, they hate it here: the importance of place in Canadian health professionals' views on the barriers facing Aboriginal patients accessing kidney transplants.
Health & Place; 15(1): 390-393