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The Pika Wiya Kuthupa project (Wongi 'not sick, different one') aims to investigate the needs of Aboriginal families caring for a child with a disability in the Goldfields region of Western Australia (WA).
The project established an Aboriginal community reference group, and during 2013 and 2014 conducted 'storytelling circles' community consultations. Aboriginal families caring for children with disabilities, schools, health and disability service representatives were invited to share their stories. Families identified the need for culturally appropriate information and support, and culturally safe models of service delivery.
In response to the needs identified, an office lease for a community outreach centre has been secured in Kalgoorlie. Called the Tjina Maala Centre (Wongi 'going on a journey') this initiative has employed two local Aboriginal Community Engagement Officers who run the centre. Families do not need a diagnosis or referral to access information and support. The project team is also currently developing Aboriginal disability resources, and continues to raise the awareness of Aboriginal views of disability in the disability sector. The project is expected to be completed towards the end of 2016, with avenues for sustainable continuation into 2017 currently being explored. Funded by the Non-government centre support scheme, this project is headed by the Ability Centre in consultation with a number of other disability service providers in WA.
Ability Centre abstract
Dr Jillian Pearsall-Jones
Pika Wiya Kuthupa project
106 Bradford Street
Coolbinia WA 6050
PO Box 61
Mount Lawley WA 6929
Ph: (08) 9443 0249
Fax: (08) 9444 7299
Community Engagement Officer
Tjina Maala Centre (Ability Centre)
42 Wilson Street, Lotteries House
Kalgoorlie WA 6430
Ph: (08) 9201 1333
The Message book for families: stories and support for carers of people with a disability was produced to provide information to Aboriginal and Torres Strait Islander families/carers of people with a disability.
The resource was developed as part of the Pika Wiya Kuthupa project (Wongi 'not sick, different one') which aims to investigate the needs of Aboriginal families caring for a child with a disability in the Goldfields region of Western Australia (WA).
The book provides information on:
The resource was produced by the Tjina Maala Centre (part of the Ability Centre).
Australian Indigenous HealthInfoNet abstract