2012
Australian Bureau of Statistics (2012)
Australian social trends, December 2012.
Canberra: Australian Bureau of Statistics
Australian Department of Health and Ageing (2012)
National ageing and aged care strategy for people from culturally and linguistically diverse (CALD) backgrounds.
Canberra: Australian Department of Health and Ageing
Australian Government Department of Health and Ageing (2012)
Living longer. Living better..
Canberra: Australian Government Department of Health and Ageing
Australian Institute of Health and Welfare (2012)
Australia's health 2012.
Canberra: Australian Institute of Health and Welfare
Australian Institute of Health and Welfare (2012)
Dementia in Australia.
Canberra: Australian Institute of Health and Welfare
This report uses a combination of recent data and information on trends over time to provide a comprehensive illustration of dementia in Australia. Dementia is regarded as a major health concern for Australia and with population ageing and growth, will pose multiple challenges to the health and aged care systems in the coming years. This report describes: the characteristics of people with dementia; the prevalence, mortality, and burden of disease associated with dementia; the use of health and aged care services by dementia sufferers; the characteristics of carers of people with dementia; and expenditure on dementia in Australia. With the number of people with dementia in Australia expected to triple between 2011 and 2050, this report is timely in providing crucial information for policymaking and service planning.
Australian Indigenous HealthInfoNet abstract
Brown J-A, Sait K, Meltzer A, Fisher KR, Thompson D, Faine R (2012)
Service and support requirements of people with younger onset dementia and their families: final report, August, 2012.
Sydney: NSW Department of Family and Community Services, Ageing, Disability and Home Care
This report outlines research undertaken by Alzheimer's Australia NSW (AlzNSW) in 2011 that sought to identify the service and support requirements of people with younger onset dementia and their families in New South Wales.
Younger onset dementia is defined as dementia which occurs before the age of 65 years and under 50 years for Indigenous people, and it is recognised that people with younger onset dementia have service requirements that differ from those of older people with dementia.
This research collected data from people with younger onset dementia, their family members and carers, and service providers, using roundtables, interviews and surveys. The findings describe the experiences of people with younger onset dementia and that of their families and carers, and are presented in three parts:
- identifying younger onset dementia
- experience of support services, and
- services in the later stages of dementia.
The report concludes with a discussion of the implications of the findings for policy and presents strategies to address key areas of need.
Adapted from Ageing, Disability and Home Care, New South Wales
Flicker L, Reilly P (2012)
Remote dementia carers stressed and overworked [radio interview].
: Central Australian Aboriginal Media Association
Jackson Pulver L, Broe GA, Grayson D, Chalkley S, Flicker L, Daylight G, Mack H, Radford K (2012)
Dementia screening for urban Aboriginal Australians: the modified Kimberley Indigenous Cognitive Assessment (mKICA).
Sydney: Dementia Collaborative Research Centres
Jensen H, Bell D, Flicker L, LoGiudice D, Lindeman M, Atkinson D, Smith K (2012)
Dementia service coordination in Aboriginal communities in Central Australia.
Perth: Western Australia Centre for Health and Ageing, University of Western Australia
Lindeman MA, Taylor KA, Kuipers P, Stothers K, Piper K (2012)
'We don't have anyone with dementia here': A case for better intersectoral collaboration for remote Indigenous clients with dementia.
Australian Journal of Rural Health; 20(4): 190-194
Logiudice D, Smith K, Atkinson D, Carroll E, Schaper F, Shadforth G, Murphy R, Lautenschlager N, Flicker L (2012)
Lungurra Ngoora: a pilot model of care for aged and disabled in a remote Australian Aboriginal community - can it work?.
Alzheimer's & Dementia; 8(4, supplement): P384
LoGiudice DC, Smith K, Shadforth G, Lindeman CE, Atkinson D, Schaper F, Lautenschlager N, Murphy R, Flicker L (2012)
Lungurra Ngoora - a pilot model of care for aged and disabled in a remote Aboriginal community – can it work?.
Rural and Remote Health; 12: 2078
Retrieved 24 December 2012 from http://www.rrh.org.au/articles/showarticlenew.asp?ArticleID=2078
McLeod T, Nolan J, Dewing J (2012)
The Kuranya/‘Rainbow’ service for Indigenous Australians, in New South Wales: innovative practice.
Dementia; 11(5): 703-706
Price J (2012)
Indigenous cognitive assessment.
Australian Nursing Journal; 20(6): 34-35
Taylor K, Lindeman M, Kuipers P, Stothers K, Piper K (2012)
Intercultural communications in remote Aboriginal Australian communities: what works in dementia education and management?.
Health Sociology Review; 21(2): 208-219
World Health Organization, Alzheimer's Disease International (2012)
Dementia: a public health priority.
Geneva: World Health Organization
2011
Australian Institute of Health and Welfare (2011)
Comparing an SLK-based and a name-based data linkage strategy: an investigation into the PIAC linkage.
Canberra: Australian Institute of Health and Welfare
Australian Institute of Health and Welfare (2011)
Dementia among aged care residents: first information from the Aged Care Funding Instrument.
Canberra: Australian Institute of Health and Welfare
Australian Institute of Health and Welfare (2011)
Older Aboriginal and Torres Strait Islander people.
Canberra: Australian Institute of Health and Welfare
Older Aboriginal and Torres Strait Islander people (2011)
Australian Institute of Health and Welfare
This factsheet contains information on older Indigenous people in Australia, including:
- the number of older Aboriginal and Torres Strait Islander people in the population
- their specific health care and support needs
- where they live
- how their needs are being met.
Abstract adapted from Australian Institute of Health and Welfare
Australian Institute of Health and Welfare (2011)
The Hospital Dementia Services Project: a study description.
Canberra: Australian Institute of Health and Welfare
Australian Institute of Health and Welfare (2011)
Trends in palliative care in Australian hospitals.
Canberra: Australian Institute of Health and Welfare
Brooke NJ (2011)
Needs of Aboriginal and Torres Strait Islander clients residing in Australian residential aged-care facilities.
Australian Journal of Rural Health; 19(4): 166-170
Fisher D (2011)
Wandering in the dreamtime.
Australian Ageing Agenda; (May-June 2011): 28-30
Frontier Services NT Dementia Behaviour Management Advisory Service (DBMAS) (2011)
New dementia resource for remote Indigenous carers.
Aboriginal and Islander Health Worker Journal; 35(5): 25
Garvey G, Simmonds D, Clements V, O'Rourke P, Sullivan K, Gorman D, Curnow V, Wise S, Beattie E (2011)
Making sense of dementia: understanding among Indigenous Australians.
International Journal of Geriatric Psychiatry; 26(6): 649–656
Garvey G, Simmonds D, Clements V, O'Rourke P, Whop L, Sullivan K, Gorman D, Curnow V, Wise S, Beattie E (2011)
Understanding dementia amongst Indigenous Australians.
Aboriginal and Islander Health Worker Journal; 35(2): 16-18
Kowal P, Gibson R, Wutzke S, Smith K, Cotter P, Strivens E, Lindeman M, LoGiudice D, Broe G (2011)
Roundtable discussion: data on ageing Aboriginal and Torres Strait Islander populations.
World Medical & Health Policy; 3(3): 7
Retrieved from http://www.psocommons.org/wmhp/vol3/iss3/art7/
LoGiudice D, Strivens E, Smith K, Stevenson M, Atkinson D, Dwyer A, Lautenschlager N, Almeida OA, Flicker L (2011)
The KICA screen: the psychometric properties of a shortened version of the KICA (Kimberley Indigenous Cognitive Assessment).
Australasian Journal on Ageing; 30(4): 215–219
Productivity Commission (2011)
Caring for older Australians: draft report.
Melbourne: Productivity Commission
Productivity Commission (2011)
Caring for older Australians: Inquiry report.
Melbourne: Productivity Commission
The Caring for older Australians: inquiry report follows the Government's request for the Productivity Commission to develop detailed options for redesigning Australia's aged care system in order to meet the challenges facing it in coming decades. The report includes the Commission's recommendations along with a summary of the reforms proposed based on consultations with older Australians, their carers, aged care providers, government agencies and other interested parties. The report also provides an overview of the diversity in the demand for aged care services with a chapter on evaluating how well aged care services are being delivered in ways that meet the needs and preferences of clients from specific groups, including Indigenous people. Principles of a reformed aged care system identified as critical to the establishment of culturally secure services specific to Indigenous Australians included factors relevant to attracting and retaining Indigenous workers to provide culturally appropriate services, use of culturally appropriate assessment tools, and support to develop service capacity appropriate to meet Indigenous clients specific needs.
Australian Indigenous HealthInfoNet abstract
Productivity Commission (2011)
Caring for older Australians: Productivity Commission inquiry report overview.
Melbourne: Productivity Commission
Reamy AM, Kim K, Zarit SH, Whitlatch CJ (2011)
Understanding discrepancy in perceptions of values: individuals with mild to moderate dementia and their family caregivers.
The Gerontologist; 51(4): 473-483
Seeher K, Withall A, Brodaty H (2011)
The Dementia Research Mapping Project: the 2010 update: final report.
Sydney: Dementia Collaborative Research Centres
Smith K, Flicker L, Shadforth G, Carroll E, Ralph N, Atkinson D, Lindeman M, Schaper F, Lautenschlager NT, LoGiudice D (2011)
‘Gotta be sit down and worked out together’: views of Aboriginal caregivers and service providers on ways to improve dementia care for Aboriginal Australians.
Rural and Remote Health; 11: 1650
Retrieved 14 June 2011 from http://www.rrh.org.au/publishedarticles/article_print_1650.pdf
2010
Access Economics (2010)
Caring places: planning for aged care & dementia 2010-2050: volume 1.
Canberra: Alzheimer's Australia
Arkles RS, Jackson Pulver LR, Robertson H, Draper B, Chalkley S, Broe GA (2010)
Ageing, cognition and dementia in Australian Aboriginal and Torres Strait Islander peoples: a life cycle approach.
Sydney: Neuroscience Research Australia and Muru Marri Indigenous Health Unit, University of New South Wales
This publication is a literature review concerning dementia in the Australian Aboriginal and Torres Strait Islander population for the years 2006-2009. The review was undertaken as a result of an emerging public health concern for the increased prevalence of dementia in remote indigenous communities; in particular the data collected for the Kimberley region of Western Australia.
The literature reviewed established that: the prevalence of dementia in the Australian Indigenous population is five times the rate for the non-Indigenous population; dementia presents at an earlier age in the Indigenous population; the perception of dementia is different across communities and situations, it is often not viewed as a medical condition; the health and social conditions Indigenous people currently experience puts them at a greater risk of developing dementia compared to non-Indigenous people; and access to services are problematic due to a lack of transport and services which take into consideration language, cultural or other circumstances unique to Indigenous people and their communities.
The review demonstrates the importance of establishing a framework for addressing dementia in the Indigenous population that is culturally appropriate and within a historical context. The review highlights the gaps in knowledge pertaining to dementia in the Indigenous population.
Finally the report makes recommendations based on the findings of the literature review emphasising that research is needed on Indigenous people's understanding of dementia, the role of carers and the impact on their wellbeing, identification and assessment and best practice models of care and services.
Australian Indigenous HealthInfoNet abstract
Australian Institute of Health and Welfare (2010)
Australia's health 2010: the twelfth biennial report of the Australian Institute of Health and Welfare.
Canberra: Australian Institute of Health and Welfare
Australia's health 2010 was released by the Australian Institute of Health and Welfare as the twelfth edition of its biennial national health report. The report shows that Australia is one of the healthiest nations in the world, with most Australians generally have good health and access to a range of good health care services, but Aboriginal and Torres Strait Islander peoples continue to have much poorer health than the general population.
Health information about Aboriginal and Torres Strait Islander peoples is included in various sections of the report but particularly in chapter 5.1 which compiles information about demographic profiles, health status, disability rates and service use. The section highlights that Indigenous Australians are continuing to die at much younger ages than non-Indigenous Australians. Indigenous Australians also continue to have a greater disease burden, higher rates of disability and a lower quality of life than other Australians. The section concludes with information on behaviours and health risk factors that shape the health status of Indigenous peoples such as tobacco use, alcohol misuse, illicit drug use, and housing conditions.
Australian Indigenous HealthInfoNet abstract
Australian Institute of Health and Welfare (2010)
Dementia and the take-up of residential respite care.
Canberra: Australian Institute of Health and Welfare
Australian Institute of Health and Welfare (2010)
Dementia and the take-up of residential respite care: an analysis using the PIAC cohort.
Canberra: Australian Institute of Health and Welfare
Carrol E, Smith K, Flicker L, LoGiudice D, Shadforth G, Ralph N, Lindeman M, Almeida O, Atkinson D, Shaper F, Lautenschlager N (2010)
Indigenous services study: Lungurra Ngoora Community Care final report.
Broome, WA: Kimberley Aboriginal Medical Services Council
Central Australian Rural Practitioners Association (2010)
CARPA standard treatment manual [5th ed.].
5th ed. Alice Springs: Central Australian Rural Practitioners Association
Many practitioners arrive in central and northern Australia without any specific relevant training for remote practice. The standard treatment manual helps them to deal with a range of health, social and work conditions that they may not have experienced before.
Australian Indigenous HealthInfoNet abstract
Department of Health and Ageing (2010)
Interim evaluation of the Northern Territory Aboriginal and Torres Strait Islander community aged care workforce development projects: final report.
Canberra: Department of Health and Ageing, Australia
Fleming R (2010)
The use of environmental assessment tools for the evaluation of Australian residential facilities for people with dementia.
Sydney: Dementia Collaborative Research Centres
Henderson S, Broe GA (2010)
Dementia in Aboriginal Australians [editorial].
Australian and New Zealand Journal of Psychiatry; 44(10): 869–871
Lindeman MA, Smith K (2010)
Remote primary health care practitioners’ views about priorities in Indigenous dementia research [letter to the editor].
Rural and Remote Health; 10: 1538
Retrieved 28 July 2010 from http://www.rrh.org.au/articles/subviewnew.asp?ArticleID=1538
Murphy R (2010)
Lungurra Ngoora Community Care Service evaluation report.
Perth: Yarmintali Consultancy
NSW Dementia Policy Team (2010)
The NSW dementia services framework 2010-2015.
Sydney: NSW Department of Health
Smith K, Flicker L, Dwyer A, Atkinson D, Almeida OP, Lautenschlager NT, LoGiudice D (2010)
Factors associated with dementia in Aboriginal Australians.
Australian and New Zealand Journal of Psychiatry; 44(10): 888–893
Smith K, LoGiudice D, Flicker L (2010)
Dementia care and best practice in rural and remote settings: a literature review.
Sydney: Dementia Collaborative Research Centres
2009
Access Economics (2009)
Keeping dementia front of mind: incidence and prevalence 2009-2050.
Canberra: Alzheimer's Australia
Burgess CP, Johnston FH, Berry HL, McDonnell J, Yibarbuk D, Gunabarra C, Mileran A, Bailie RS (2009)
Healthy country, healthy people: the relationship between Indigenous health status and “caring for country”.
Medical Journal of Australia; 190(10): 567-572
Runge C, Gilham J, Peut A (2009)
Transitions in care of people with dementia: a systematic review of the literature.
Canberra: Australian Institute of Health and Welfare
SBS TV (2009)
Lost memories: living black episode.
: SBS TV
Smith K, Flicker L, Dwyer A, Marsh G, Mahajani S, Almeida O, Lautenschlager N, Atkinson D, LoGiudice D (2009)
Assessing cognitive impairment in Indigenous Australians: re-evaluation of the Kimberley Indigenous Cognitive Assessment in Western Australia and the Northern Territory.
Australian Psychologist; 44(1): 54-61
Smith K (2009)
Assessment and prevalence of dementia in Indigenous Australians.
Doctor of Philosophy in Medicine thesis, University of Western Australia: Perth
Young R (2009)
Ageing in the bush: what is remotely possible?.
Paper presented at the From creative ageing to end-of-life in rural and remote Australia. 17 November 2009, Canberra
2008
Aboriginal and Torres Strait Islander Ageing Committee of the Australian Association of Gerontology (2008)
Growing old well - a life cycle approach for Aboriginal and Torres Strait Islander peoples.
Brisbane: Australian Assocation of Gerontology
Alt Beatty Consulting (2008)
HACC service models for people with younger onset dementia and people with dementia and behaviours of concern: issues for Aboriginal and Torres Strait Islander people and people from culturally and linguistically diverse backgrounds.
Mosman NSW: Ageing, Disability and Home Care, Department of Human Services NSW
Arehart-Treichel J (2008)
Dementia 'epidemic' plagues some Indigenous Australians.
Psychiatric News; 43(21): 21
Australian Bureau of Statistics (2008)
A profile of carers in Australia.
Canberra: Australian Bureau of Statistics
Australian Institute of Health and Welfare (2008)
Australia's health 2008: the eleventh biennial health report of the Australian Institute of Health and Welfare.
Canberra: Australian Institute of Health and Welfare
Australia's health 2008 was released by the Australian Institute of Health and Welfare as the eleventh edition of its biennial national health report. The report shows that Australia is one of the healthiest nations in the world, with most Australians generally have good health and access to a range of good health care services, but Aboriginal and Torres Strait Islander peoples continue to have much poorer health than the general population.
Section 3.2 of the report compiles health information on Aboriginal and Torres Strait Islander peoples. Information about the demographic profile, health status, disability rates, and service use is provided. The section highlights that despite improvements in Indigenous death rates, the overall gap between Indigenous and non-Indigenous rates appears to be widening with Indigenous Australians continuing to die at much younger ages. Indigenous Australians also continue to have a greater disease burden, higher rates of disability and a lower quality of life than other Australians. The section concludes with information on behaviours and health risk factors that shape the health status of Indigenous peoples such as tobacco use, alcohol misuse, illicit drug use, and housing conditions.
Australian Indigenous HealthInfoNet abstract
Bennett DA (2008)
Cognitive health in Indigenous peoples.
Neurology; 71(19): 1466-1467
Broe GA, Pulver LJ (2008)
A life cycle approach to ageing, health and dementia in Aboriginal and Torres Strait Islander people.
Wollongong, NSW: Muru Marri Indigenous Health Unit, UNSW, and Prince of Wales Medical Research Institute
Broe GA, Jackson Pulver L, Arkles R, Robertson H, Kelso W, Draper B (2008)
Cognition, ageing and dementia in Australian Aboriginal and Torres Strait Islander peoples: a review of the literature.
Sydney: Dementia Collaborative Research Centre, University of New South Wales
Smith K, Flicker L, Lautenschlager NT, Almeida OP, Atkinson D, Dwyer A, LoGiudice D (2008)
High prevalence of dementia and cognitive impairment in Indigenous Australians.
Neurology; 71(19): 1470-1473
Woods S (2008)
Men and memory loss.
The Chronicle; 11(6): 26-27
2007
Alzheimer's Australia (2007)
Dementia: a major health problem for Indigenous people: briefing prepared for Parliamentary Friends of Dementia.
Canberra: Alzheimer's Australia
This briefing paper highlights that a start has been made in identifying the prevalence of dementia among Indigenous people. Recent research in the Kimberley region of Western Australia suggests that prevalence rates of dementia could be 4 -5 times higher among Indigenous people than those in the general Australian community. A National Indigenous Dementia Strategy has been developed to provide a framework for action, with a need for Alzheimer's Australia and Indigenous organisations to obtain the resources required to implement this strategy.
Australian Indigenous HealthInfoNet abstract
Arabena K (2007)
Before I forget’: dementia in Aboriginal and Torres Strait Islander communities.
Ngoonjook: a Journal of Australian Indigenous Issues; 30: 41-49
Australian Institute of Health and Welfare (2007)
Dementia in Australia: national data analysis and development.
Canberra: Australian Institute of Health and Welfare
Cotter P, Anderson I, Smith LR (2007)
Indigenous Australians: ageing without longevity?.
In: Borowski A, Ozanne E, Encel S, eds. Longevity and social change in Australia. Sydney: UNSW Press:
Curnow V (2007)
Meeting the needs of Aboriginal and Torres Strait Islander people with dementia, their families and carers.
Canberra: Alzheimer's Australia
Flicker L (2007)
Dementia in Indigenous rural, remote communities.
: Curtin University of Technology
LAMA Consortium (2007)
Helping Australians with dementia, and their carers.
Melbourne, Vic: La Trobe University
Smith K, LoGiudice D, Dwyer A, Thomas J, Flicker L, Lautenschlager NT, Almeida OP, Atkinson D (2007)
‘Ngana minyarti? What is this?’ Development of cognitive questions for the Kimberley Indigenous Cognitive Assessment.
Australasian Journal on Ageing; 26(3): 115-119
Warburton J, Chambers B (2007)
Older Indigenous Australians: their integral role in culture and community.
Australasian Journal on Ageing; 26(1): 3-7
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