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To mark World Kidney Day 2014 Thursday,13 March, 2014 Australia's first Indigenous kidney specialist has expressed a need for research institutes to have a greater level of engagement with the people who participate in their research efforts.
Menzies Research Fellow, Dr Jaqui Hughes pointed to Menzies collaboration with the Top End renal patient group through the STARRS project as being critical to the feasibility and success of the project.
The STARRS project, which aims to reduce high rates of serious golden staph infections in Northern Territory (NT) dialysis patients, is a collaborative effort between Menzies infectious diseases, renal-preventable chronic diseases and microbiology research divisions, and NT Renal Services.
Dr Hughes said that with support from the STARRS project team, the Top End renal patient group had championed the creation of the independent Renal Patient Advocacy and Advisory Committee (RAAC).
'The committee comprises of adults from diverse communities and language groups, who are receiving dialysis or have a kidney transplant to treat severe or end-stage kidney disease,' said Dr Hughes.
'Of its many notable achievements, the RAAC group has independently identified priority concerns of renal patients and gained representation in 2013 and 2014 at the National Renal Consumer group forum. This has never before been achieved,' she said.
Source: Menzies School of Health Research